Feb 06

European Institute for Innovation Thr~ugh Health Data



A new not for profit Institute is being launched next month in Europe which is definitely worth keeping your eye.  It will be guiding and catalysing the best, most efficient and trustworthy uses of health data and interoperability, for optimising health and knowledge discovery.




3 things they do

  • Provide independent governance oversight of clinical research platforms and services.
  • Promote trustworthy re-use of health data for research.
  • Future role in the development and quality labelling of semantic interoperability standards. Bringing together clinical and research domain experts, with patients, to help ensure that future standards support patient care, learning health systems and clinical research.

3 initial areas of focus

  • Defining codes of practice for research centres and sponsors when re-using electronic health records for research.
  • Appointing a high level expert legal and ethics and governance body to provide voluntary oversight of all such uses across Europe.
  • Developing an online search directory and register of interoperability assets that can be reused by other projects and initiatives developing integrated care solutions.

March 2016 will also see the launch of a novel European platform to support multi-centre clinical research. This operational platform, the result of the European project EHR4CR (Electronic Health Records for Clinical Research), can connect securely to the data within multiple hospital EHR systems and clinical data warehouses across Europe, to enable a trial sponsor to predict the number of eligible patients for a candidate clinical trial protocol, to assess its feasibility and to locate the most relevant hospital sites.





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